Doctors

Dr. Hana Niebur
Immunology/Children’s Hospital

Children’s Hospital & Medical Center Specialty Pediatric Center
111 N. 84th St., Omaha, NE 68114
hniebur@childrensomaha.org

Dr. David Finken
UNMC General Peds/Children's Physicians
42nd St & Emile St, Omaha, NE 68918
402-955-8125 phone
402-955-8140 fax


Dr. Michael Bober
Skeletal Dysplasia Program
Division of Medical Genetics
Nemours/Alfred I. duPont Hospital for Children
1600 Rockland Road | Wilmington, DE 19803
Skeletal Dysplasia Program Phone: 302-651-4880
Division Phone: 302-651-5916
Division Fax: 302-651-5033

Nemours/Alfred I duPont Hospital for Children
Orthopedics Pediatrics
600 Rockland Road, Wilmington, DE 19803
Dr. Mackenzie 1-302-651-5890
Colleen P Ditro | DNP,CPNP | Department of Orthopaedics
Lead Orthopaedic Nurse Practitioner
AIDHC | 1600 Rockland Road | Wilmington, DE 19803
(P) 302.651.6326 | (F) 302.651.5951 | cditro@nemours.org


Dr. Alive Bertaina
Stem Cell Transplantation

Email: aliceb1@stanford.edu
Office Phone: (650) 497-2447
Cell Phone: (650) 353-6404
Administrative Associate: Beatrice Ochoa
Email: beatrice.ochoa@stanford.edu
Office Phone: (650) 498-1054

Dr. David Lewis
Pediatrics — Immunology and Allergy

Email: dblewis@stanford.edu
Office Phone: (650) 723-0290
Cell Phone (650) 380-4651
Administrative Associate: Elena Infeld
Email: elinfeld@stanford.edu
Office Phone: (650) 498-6073


Dr. Elena Levtchenko
Pediatric Nephrology

University Hospitals Leuven
e-mail: Elena.levtchenko@uzleuven.be

Dr Noël Knops, MD PhD
Pediatrician-nephrologist

University Hospitals Leuven
Herestraat 49
B-3000 Leuven
tel: + 32- (0) 16 -343822 / -343827
fax: + 32- (0) 16-343842
e-mail: noel.knops@uzleuven.be


Olivia Boyer, M.D., Ph.D.
Institution: Hôpital Necker - Enfants Malades, Imagine Institute, Paris Descartes, Sorbonne Paris Cité University

Reference center for Nephrotic Syndrome and Hereditary Kidney Diseases
http://www.institutimagine.org/en/
http://hopital-necker.aphp.fr/
http://www.filiereorkid.com/
e-mail: olivia.boyer@aphp.fr
Specialization: Pediatric Nephrologist, Chairman of the ERKNet Workgroup for Hereditary Glomerulopathies
http://cv.parisdescartes.fr/olivia.boyer
Experience with SIOD:
- Clinical experience: 4 patients
- Research experience:
Low renal but high extrarenal phenotype variability in Schimke immuno-osseous dysplasia.

Lipska-Ziętkiewicz BS1, Gellermann J2, Boyer O 3,4, Gribouval O3, Ziętkiewicz S5, Kari JA6, Shalaby MA6, Ozaltin F7,8,9, Dusek J10, Melk A11, Bayazit AK12, Massella L13, Hyla-Klekot L14, Habbig S15, Godron A16, Szczepańska M17, Bieniaś B18, Drożdż D19, Odeh R20, Jarmużek W21, Zachwieja K19, Trautmann A22, Antignac C3,23, Schaefer F22; PodoNet Consortium. PLoS One. 2017 Aug 10;12(8):e0180926. doi: 10.1371/journal.pone.0180926. eCollection 2017.