As A Community We Can...
All children with SIOD have extremely low immune systems.
During "flu" season we have to be extra cautious with everyone really. Extra hand washings, masks for doc apts even if we aren't the ones sick, and changing clothes when we get home from school, outings or events.😷
We're used to and have gotten pretty darn ingenious about practicing really good hygiene, especially these winter months, because we know how detrimental even a common cold could turn for Emily.
One of our greatest concerns is one of the NUMBER ONE causes of DEATH in an #SIOD child...infection. #believeinemily #littlegiants #raregenticdisease #infection
As a community we can all do our best to establish healthier hand washing routines, staying home when sick and with fever and staying respectfully away from those we know are also susceptible to infections.
Together We Can Do Something Extraordinary!
